Register your interest
Home
About us
About us
Who is running the registry?
What is the benefit of the registry?
Our team
Type of diseases
Type of diseases
DMD
SMA
FSHD
Collagen-VI Related Dystrophy
Myotonic Dystrophy
LGMD
Congenital Myopathies
Congenital Muscular Dystrophies
GNE Myopathy
Centronuclear or Myotubular Myopathies
Clinical trial finder
Registry updates
Contact us
Contact us
Research request
Our team
Dr Eppie Yiu
Robin Forbes
Anna O'Malley
Matt White
About us
Who is running the registry?
What is the benefit of the registry?
Our team
Proudly in partnership with